This was quite upsetting for the both of us. Bob, bless him, even tried to defend himself. He told her, "I get better" and "I do good" to no avail. Watching him plead was just heartbreaking. I had to leave the room at one point, tears were welling up in my eyes and I had to get out of there just to compose myself.
I don't understand it. I have read both reports, the one from February and this new one. And though I'm not an expert, it looks like progress to me. For example, to compare the two reports (italics are mine):
Feb. report: "There was severe impairment of the oral phase."
June report: "Oral phase of swallow shows mild delay with mild difficulty propelling the bolus posteriorly in the oral cavity."
Feb. report: "There is significantly delayed swallowing response"
June report: "Mildly delayed initiation of swallow is evident."
I ask you, isn't that progress?
The rest of the day at Rehab was spent "discharge planning", i.e., both the OT and ST giving me instructions on how to do therapy at home. This therapy consists basically of exercises as there is no way I can do the e-stim at home as I don't have the machines. Very disheartening, the whole thing.
After rehab, Bob had an appointment with his neurologist. The good news here is that after an exam and a few tests, the neurologist is certain that Bob's CIDP is gone, or as he said "inactive". Doctors will never admit that something like CIDP is "gone", just in "remission". Well, whatever. This certainly is good news!! We then talked about Rehab and, of course, I told him all the trouble with being discharged and gave him copies of the two swallow tests and though he was disappointed with the new results, he said the new test was certainly "better" and (get this) the doctor is going to send a new script to the Rehab Center requesting them to continue Bob's therapy! Both OT and ST. Yes!
Now, we'll see what happens. Will Rehab follow the doctor's orders? Will the therapists be pissed that I have gone over their heads?
We go back to Rehab today.