tag:blogger.com,1999:blog-4683912290300109544.post2185061372026418190..comments2024-03-13T17:10:38.581-04:00Comments on The Pink House on the Corner : A Typical Day is Worth--- what?Dianehttp://www.blogger.com/profile/03278023836822429631noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-4683912290300109544.post-48541741096515863552013-02-05T00:17:27.559-05:002013-02-05T00:17:27.559-05:00hey it's me Barbie aka Lori , don't forget...hey it's me Barbie aka Lori , don't forget overnight tube feed monitoring . He is unable to remove himself from harm so he needs 24 hour monitoring for safety so <br />......good luckAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4683912290300109544.post-46180923696948666852013-02-02T13:29:31.157-05:002013-02-02T13:29:31.157-05:00Medicare does not cover Respite care. I believe Me...Medicare does not cover Respite care. I believe Medicaid does, but Bob doesn't qualify for Medicaid. There are some state/county programs but Bob is either "too old" or "too young" or "too rich" (ha) to qualify. I don't know what would happen if I got too ill to do this--so far so good! Probably Bob would end up in a nursing home... I get no help, except from my friend Chris, god love her, who sits with Bob so I go grocery shopping and run errands. <br /><br />People tend to think there is all this "help" out there, I know I used to! then you find yourself in this situation and learn the truth about how the system works....Dianehttps://www.blogger.com/profile/03278023836822429631noreply@blogger.comtag:blogger.com,1999:blog-4683912290300109544.post-23063795053329619142013-02-02T10:42:51.027-05:002013-02-02T10:42:51.027-05:00I'm wondering if Medicare would care to cover ...I'm wondering if Medicare would care to cover Respite care so Caregivers would get some time off - you folks are working 24/7/ 365 not 9-5 M-F with weekends off and sick days. What would happen if you came down ill? What help do you get and how? I would love to know the answers to these questions!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4683912290300109544.post-36262846027374290842013-02-01T09:00:16.062-05:002013-02-01T09:00:16.062-05:00I did much the much the same time line report for ...I did much the much the same time line report for one day about a year ago when I was caring for my wife. She couldn't understand why I was tired all the time since I "was just taking care of her"! She didn't think there was much work involved. After doing the time line and having her read it, I didn't hear about my "easy job" any longer.<br /><br />It's always amazing the time involved in caregiving. The part that most people don't consider is how full time caregiving affects the caregiver. There is no personal time, there is no real break time, there is no vacation, pay is non-existent, there is no escape from the stress, and sleep deprivation is all too common. There is no other job in the world that has such lousy benefits, yet we do our job proudly, with compassion and love, with little complaining, and the best care possible. <br /><br />Though it won't change your work level, I do hope you can be financially rewarded to some extent for all you are doing.<br /><br />Hugs, Dan Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4683912290300109544.post-55476383620608517432013-01-31T21:37:42.089-05:002013-01-31T21:37:42.089-05:00Hi Diane,
If I were "on the jury" I wou...Hi Diane,<br /><br />If I were "on the jury" I would award you a gazillion dollars.<br /><br />There is no harder work on this planet than being a caregiver!<br /><br />Being a caregiver myself, I have not received sick pay, vacation time, a pension plan, insurance benefits or a cost of living raise.<br /><br />Hurrah to us caregivers! Sending love your way -:}Susannoreply@blogger.comtag:blogger.com,1999:blog-4683912290300109544.post-52323601714266752672013-01-31T14:39:51.151-05:002013-01-31T14:39:51.151-05:00Hi Diane. I just started reading your blog a few ...Hi Diane. I just started reading your blog a few months ago and am enoying it immensely. I go back through the older posts whenever I have the time. I had a hemorrhagic stroke on 10/21/11 in the right hemisphere, so am left-side affected. I was very lucky and wasn't affected to any great extent. I was able to keep my job as an architect designing accessible rental housing (ironic I know). Like Bob I like to draw and paint, and like you I like to write, but I am not as good at either as you all are. I admire you very much. Say hello to Bob for mewrinklesnoreply@blogger.comtag:blogger.com,1999:blog-4683912290300109544.post-23013695303546176292013-01-31T11:40:21.753-05:002013-01-31T11:40:21.753-05:00Diane,
The point is they can't afford to repla...Diane,<br />The point is they can't afford to replace you. I watched my Social Security drop year after year while I became the constant caregiver to the point where it is diddly.<br /><br />Medicare would pay to have a visiting nurse and private duty up to a point to care for my husband, and expect me to work a full time job outside the home to contribute money into a system that they borrowed from Peter to pay Paul.<br /><br />A wife cannot be a full time caregiver and "paid." There is something wrong with this system. That doesn't consider being a wife, mother, caregiver (a license one to boot) and not consider it earned income.J.L. Murpheyhttps://www.blogger.com/profile/11782355786883006411noreply@blogger.comtag:blogger.com,1999:blog-4683912290300109544.post-37182672942681105272013-01-31T11:26:48.187-05:002013-01-31T11:26:48.187-05:00Being a writer is powerful in many ways. Being a writer is powerful in many ways. Rebecca Duttonhttps://www.blogger.com/profile/09004104301521792927noreply@blogger.comtag:blogger.com,1999:blog-4683912290300109544.post-84777055788166809242013-01-31T11:12:03.595-05:002013-01-31T11:12:03.595-05:00I'm crossing my fingers for you - getting back...I'm crossing my fingers for you - getting back wages would be a win. kdstentzelhttps://www.blogger.com/profile/07526412488609527652noreply@blogger.com