I am baffled. Bob's mouth pain has pretty much disappeared. I guess that's good news, but what happened? Over the past two weeks, he has only asked for the Lidocaine ointment once and then complained that the ointment "tingles". He still opens his mouth and indicates his upper and lower gums with his finger (which he used to do) but now instead of saying "hurts" he says "gone". Not "gone" in a good way, as in the mouth pain is gone, but in a bad way, as if something in his mouth is gone. I'm thinking he means his dentures, which no longer fit.
In the hospital, they had tried to put his dentures in his mouth several times after his stroke. I remember one time vividly, because Bob looked horrible, it seemed like someone had stuck huge horse teeth in his mouth and he was terribly in pain, and when they took them out, his gums began to bleed. He had lost a lot of weight, going in for surgery he weighed 185 and coming home, he was 152. Since he's been home, he's been steadily gaining weight, so we tried the dentures again, but they are still too big. He can't even get them into his mouth.
I took him to a dentist yesterday, hoping for a solution. Do the dentures need adjusting? Or does he need a new set? I was told that he probably needs new dentures but in order to get these, they have to take a special x-ray in a panoramic machine and in order to do that, he needs to be able to stand up. They said they can't do it in a wheelchair. This, too, baffles me. I admit I didn't see what this machine looks like, but... what can I say? Here's more motivation for Bob to get up and stand.
And back to the mouth pain. What caused it? Why did it disappear? Then, I wonder, did his mouth really "hurt" or all this while was it just that Bob was frustrated without his dentures and didn't know the proper word to describe what he was going through? And I think of all the chasing around we did, going to different doctors, running all sorts of tests.... yikes. Or was it a vitamin deficiency, like one doctor suggested, and now that I have him on a vitamin regimen, it's better?
This, I think, is one of the hardest things. Not knowing what goes on his mind. Misunderstanding what he's trying to tell me because he can't find the right words. Even now, I'm not sure if it's the dentures he's talking about being "gone" or something else--like his ability to speak and swallow...