Yesterday, I called Outpatient Rehab and cancelled Bob's appointments. All of them.
I tell you, it was a hard thing to do.
But Bob did not want to go to therapy on Friday. And he still did not want to go to therapy on Monday. So we talked about it. Well, "talked" as best you can with someone with expressive aphasia. The reason he gave was that his left foot "hurts" and "ow!" even more when they get him up standing and walking. And I asked him if he wanted to ever go back and he said "no" and then, "sorry, sorry, sorry" with tears in his eyes.
Bob's left foot is his "unaffected" foot which has been crippled by post-stroke dystonia. I have noticed the dystonia getting all around worse, to the point where I cannot even manually uncurl his toes, and his neck is more and more difficult to move and even his left hand has developed "dystonia tremors", making it harder and harder for him to draw....
I talked with his therapist and asked her if it was at all possible to "postpone" Bob's therapy until after the Botox injections. She said that if it was more than 30 days, we'd have to get a new script and get another insurance approval then have a new evaluation and pretty much start over from scratch. But she said she'd be happy to work with him again, after the injections.
So there will be a lot riding on these Botox injections. Like the ability to ever walk again.
I am told there is only a 50/50 chance of the Botox working. Then there is another chance that, even if they work, the effect will wear off long before the insurance will approve another injection. Then there is the chance of weird side effects.
Plus the Botox doctor didn't think it would help Bob's foot. And he didn't even want to try it. Though two other doctors said they thought it would...
We see the Botox doctor in May and I will have to try to convince him to do Bob's toes in addition to his neck. Bob is already on the "injection list" for July.
It looks like it's going to be a long, hot summer....