The Pink House on the Corner

Our Journey After Bob's Stroke

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I will always love you!

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Diane: Bob and I were married 09/16/94. He is my soulmate, the love of my life. Bob is an artist and I am a writer. On 10/20/10, Bob, following his doctor's advice, underwent a carotid endarterectomy. When I left him in ICU that night, he was fine and I thought in good hands. Two hours after my departure, a nurse noted on his chart that Bob's speech was slurred and his right arm was paralyzed. The nurse did not call a doctor. Later that night, the nurse noted that Bob could not move his right arm or leg, still a doctor was not called. The next morning, the nurse noted that he was paralyzed on the right side, a "12" on the Glasgow Coma Scale, disoriented and confused, but no doctor was informed. I arrived at 9:00 a.m. and immediately called for the doctor. He was rushed to surgery. It was 12 hours too late. The CAT scan showed 2/3 of his brain had been damaged. I was told he would not survive. Somehow, he did. Bob was discharged from the hospital on 12/31/10 and, although the hospital wanted him sent to a nursing home, I brought him home instead. This is the story of our journey since that day. This is also a love story. (Bob passed away 5/28/15 and I am trying to survive....)

Bob & Me & The Green Machine

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https://www.opencaregiving.com

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Careliving Community for Caregivers of Stroke Survivors

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Cry Babel: the nightmare of aphasia and a courageous woman's struggle to rebuild her life, by April Armstrong
My Stroke of Insight (a brain scientist's personal journey) by Jill Bolte Taylor
Portrait of Aphasia by David Knox
The Teaching of Talking: Learn to Do Expert Speech Therapy at Home with Children and Adults by Mark A. Ittleman, MS, CCC/SLP

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